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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Howard
7 min read
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714
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User Blogs
12/25/2023 - 0017 hours I'm in the midst of what sounds like a war zone (out there). Round after round of gunfire, explosions on all sides, and flashing pyrotechnics are at hand. I'm not exactly sure why this is happening on what was once known as Christmas Eve —- but perhaps I missed the...
zzz
linusbert
1 min read
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238
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User Blogs
those who know already know, the others do not want to know
Howard
4 min read
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Yeah, maybe that's the first thing that came to mind when he woke up yesterday morning... He??? Yeah, I should probably explain. So in between storms last night, I decided to go out for a short ride into the rather brisk early evening. To take in the scene, I sat near the side of the...
sunshine44
2 min read
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Sharing a beautiful song and a writing from rosemary gladstar ✨☀️ “Tomorrow brings the winter solstice, the darkest day of the year. It's a reminder that even in the darkest of times, the tiniest glimmer of light can bring hope. As Howard Zinn so sagely said, "To be hopeful in bad times is not...
Howard
5 min read
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User Blogs
Yo, people of Phoenix Rising - Lend me your ears! Or how about … your eyeballs instead? Ummm, this will be a sort of rant. But not really. This is a copy of the email I'm sending to my dietitian / nutritionist. Why am I sending this to her? Well, why not? I have to send this to somebody. Not...
sunshine44
7 min read
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Tonight we will explore medicinal mushrooms in healing gut health. Something modern society has gotten far away from …. Is remembering the healing qualities of many mushrooms. They are in a category of their own food wise, they are not quite a vegetable and they are quite intelligent! I highly...
sunshine44
6 min read
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240
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I had a dream… It’s probably intense for many I’m sure. That’s your invitation to leave 😉 The good news is it’s not just cathartic for me but possibly others too. Hence why I’m sharing. “You watched me burn” I live in a small ish town of 20k. On the tip of a lake. This dream took place in...
Howard
7 min read
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414
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Responses to (and updates for) those of you who've been following along from blog entry to blog entry. And then also, brief background information explaining “how I got here” - in case anybody ‘new’ has happened along: NOTE - Not new to the story? For your ease and convenience, please skip...
sunshine44
5 min read
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This is to help remind me what and how I’m doing it because sometimes i have so many Things up my sleeve I lose track, ha! And maybe it will remind someone else too … or maybe someone wants to add things they are doing in comments. We all know gut health is important with this illness. Many of...
godlovesatrier
1 min read
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Hi guys, So I have been feeling progressiely better on legumes but I still don't have my test results from biomesight to prove anything. However I did go out yesterday and had fatigue in the evening but I also experienced some acute stress the same day and I could feel that playing havoc with...
Howard
2 min read
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504
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Responses to comments from previous blog entry --- Hey y'all ... appreciate the suggestions. My doctor told me to go to the hospital tonight, but really, there's no sense in doing so (right now). I am basing this upon my urine color (yellow / straw), and upon the fact that I felt decent over...
sunshine44
4 min read
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441
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“All right Wild child, full of grace Savior of the human race Your cool face Natural child, terrible child Not your mother's or your father's child You're our child, screaming wild An ancient lunatic reigns In the trees of the night With hunger at her heels Freedom in her eyes She dances on...
sunshine44
6 min read
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394
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My daughter has been showing signs of what I have or mold illness or a combination of both. For sometime now. 5 drs past 10 days. The most ridiculous diagnosis reasons for throwing up 3-5 am while just wanting to sleep and feeling burning up with no fever, 2 abnormal thyroid tests but not off...
godlovesatrier
3 min read
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387
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Someone asked me to update this post, I am no longer taking tudca, will try UDCA at some point: Diet High fibre to lower bacteroidetes (30g a day up from around 15) Low fat to lower bacteroidetes (removal of lamb, red meat once a week, fatty foods like chorizo and others out) Regular...
godlovesatrier
2 min read
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Well my symptoms of sore throat, congestion and poor digestion with some very mild fatigue came back overnight after a 24 hour tudca break. Insomnia was bad overnight but I somehow managed to get back to sleep after covering myself with a second duvet. My body does this very very strange thing...
godlovesatrier
2 min read
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447
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Hi guys, So I have been taking tudca for about 6 to 7 days 250mg a day. I have been quite shocked at some of the improvements, here's a list: 1. initially improved cognitive clarity (less so in subsequent days likey due to poor sleep) 2. Physical fatigue disappeared and even when I had a bit...
Howard
6 min read
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727
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First, Last and Only "You need to try harder if you want to get stronger. Most people don't push themselves." Yes, he was talking to me, and about me. That was his immediate impression. The physical therapist assigned to me was insinuating that I wasn't trying hard enough, that I was unwilling...
Howard
8 min read
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776
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Basically, I am hiding in a cave. But it's not particularly dark, nor dank. Nope, I'd suggest dry and warm is the thematic equivalent. Or possibly, it's more so the thermostatic likeness. So while living in this garage, I must remain unheard and unseen for the duration - I shan't be deported...
godlovesatrier
2 min read
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353
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Continuing to eat black eyed beans while battling seasonal viruses and kidney stones. I've just done another round of 3 100g doses of black eyed beans and feel better again physically for doing it. I have had to increase my rishi dose to 4 caps 3 X a day and ive restarted TIME lions mane...
sunshine44
2 min read
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482
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3
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Eclipse Moon Enough, Enough Close the doors please 🙏 “Strange times we're living in World can put fear in ya Hierarchy parties, they make us feel inferior Greed runs through the parliament interior Devils walk among us, they fit the criteria Eerie theories strike fear in weary minded men...