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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoThe operation is callef the Same Day Garage Service. Based solely upon that name, you think they'd repair the gosh darn garage door within a... -
Not Exactly an Emergency / The Beat Heat ManifestoThat makes sense, but that's not the case in my former nursing home. The only time the fire department was called was when there was visible blood...
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“What Happened to You?”That would be a scary prospect for anyone. I think B vitamins... especially thiamine helps repel mosquitoes but it takes a while to build up... -
“What Happened to You?”Nope. It's been unseasonably cool of late. Today was only in the '80s. Glorious weather to behold! Towards this weekend it's going to be upwards...
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Today I woke up already somewhat exhausted and it was the second day off the round of activated charcoal I gave myself and day 3 of propolis. It seems to be sitting well with my and consistently keeping inflammation low so until it tells me otherwise I'm keeping in my supplement stack. Pretty...
Hi all,
So I got covid over christmas and continued with the legumes but stopped biomesight testing and any new gut based treatments.
Covid did a number on me and whilst i am not battling fatigue as badly I have some symptoms I am struggling with.
When I got covid I had a fever of 39 for two...
Yesterday I went from extremely high strung energetically to more stable but far lower energy than I'd like after just a partial amount of anthocyanin that I thought might help with inflammation and my guts but the result we're mixed. I was extremely tired within 10 minutes of taking it, seemed...
This may be a depressing unsatisfactory read. Proceed with caution.
Brief update:
I received trigger point lidocaine injections this afternoon in my stoma area, and the pain went away... for 60 minutes. Yes, it was a glorious 60 minutes!
I have a follow-up appointment on February 8th.
In...
Not much has changed since my last post except I have my vitamin B1 powder again so I figured I would jot down everything I am currently taking to address my long term B12 deficiency/refeeding syndrome. (see last blog post for details)
Vit B12 1000 mcg 3-4x a day (currently using multiple...
Today I woke up somewhat rested, sleep wise last night wasn't as bad as I thought it would be. The morning and work was also better than I expected. My mood was better today and something was generally more connected in my brain though I can't really specifically describe what I mean by that...
It's always seems like every time I have an extended amount of days off I always find myself in some kind of trouble. Today I was pretty peaceful when I woke up and actually did sleep through the night for once but it was one of those nights where I was going to sleep for hours too long if I...
Last night I starts ultra low dose activated charcoal, I take a fraction of a 1/4th teaspoon and have a gulp. Even this is proving to be pretty intense for me. Sleeping besides a brief period of delirious dreaming in my freezing cold floor futon was nearly impossible. In the morning I woke up...
Just a warning as I get into a variety of topics on here including sexual one's related to my health or other life events, was going to add more to my about page here but I can't find out where you go to edit that. Anyhow in the past few days after introducing vitamin K2 I've been able to...
“May the light illuminate all hearts” ~ author unknown
From my room to yours, close your eyes and feel the sun 💛 let it feed your own inner light ✨
Yes, I am still working on that darned thing, that album which remains incomplete (from last summer). I figured, who knows, I better put something out while I remain capable of doing such things. A couple songs still need some editing. And then vocals are needed and necessary. So I got to sing...
1:01 am and finally the pain has diminished in such a way as to allow my potential sleeping (while listening to Oranssi Pazuzu’s most recently released effort, Mestarin Kynsi. You see, I had wanted this album since the first came out a couple of years ago. During the big covid surge (back when I...
I'm very grateful to this community for creating such an extensive resource for the chronically ill. When I recently started having negative reactions to an oral B12 supplement I was surprised and confused. Not that long ago I had been able to afford vitamin B12 injections and had an amazing...
Perhaps of interest if, for example, you are thinking of joining another social media platform.
My social media channels are listed here: https://me-pedia.org/wiki/Tom_Kindlon#Online_presence
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Mastodon vs Bluesky
Just in case of interest to anyone:
I now have exactly the same number of...
“However long
or dark your night is
Right where you are
That’s where the light is
My love
The sun
Is a reflection
It’s true
We’re one
We are each other”
One of my most favorite songs.
I used to listen to it and sing it over and over at campfires as my limited energy allotted. It...
Barbara O’Neill has some amazing gems of wisdom pertaining to health. I’m not even going to summarize. If interested, highly worth your time to watch this in its entirety.
“For some you will be a mystic
For some you will be crazy
For some you will be a wise man
For others you will be misunderstood
You will be a good example to some
A danger to others
To some people you can be a good friend
Do you realize?
You are merely a reflection of the state of mind of...
12/25/2023 - 0017 hours
I'm in the midst of what sounds like a war zone (out there). Round after round of gunfire, explosions on all sides, and flashing pyrotechnics are at hand. I'm not exactly sure why this is happening on what was once known as Christmas Eve —- but perhaps I missed the...
Yeah, maybe that's the first thing that came to mind when he woke up yesterday morning...
He???
Yeah, I should probably explain.
So in between storms last night, I decided to go out for a short ride into the rather brisk early evening. To take in the scene, I sat near the side of the...