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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Absolutely Bizarre / Sympathetic Vibrational ShockRufous made me think of this because right after you posted this she liked an old post of mine where I talked about bamboo conducting electricity... -
Absolutely Bizarre / Sympathetic Vibrational ShockI still need to replace the amp for the fender stratacaster which was evacuated, and my husband yelled at me about the amplifier as I was putting... -
Absolutely Bizarre / Sympathetic Vibrational ShockI understand....I did not replace most of my life after it all came down. I felt I did not need to, nor was it OK to do so. However, somebody...
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Absolutely Bizarre / Sympathetic Vibrational ShockI understand this mentality. Part of me still wants to purchase memories (in the sense that you mention), or outmoded music gear, books I already... -
Absolutely Bizarre / Sympathetic Vibrational ShockI just hallucinated on that photo, before I had clicked on it and it was small: it looked like a man was pouring water into the red tubes. Only...
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4 days,
21 hours,
and 44 minutes
is all I have left
And really, I should stop right there. No need to continue on with additional words, is there?
Well, I suppose there's a minimum amount of words required to officially make this a blog entry. So I shall indeed enter more words. And then...
The current situation.
Why is this whole illness such a nightmare from beyond? It’s like some of us have to stave off demons from every direction whilst already battling for our lives alone.
So, I have a few things that are approaching medical intervention, if I want to stay alive that is...
Hi guys,
I wanted to do an update on what I take now and what dietary interventions I am making that are important.
I am still on a lot of josh's OLD protocol (not his new one) but I have added a few other things, so here it is
Diet interventions increase firmicutes and lower bacteroidetes...
“…hi Ren… I’ve been taking some time to be distant,
I’ve been taking some time to be still
I’ve been taking some time to be by myself and I've spent half my life ill
But just as sure as the tide start turning
Just as sure as the night has dawn
Just as sure as rain fall soon runs dry when you...
This will be one of my last evenings perched above the freeway. And due to the excess noise beneath me, I am nearly hollering into my phone as a means to get my words across and understood (via voice-to-text). I suppose you don't need to know this, or perhaps, you don't need to know anything at...
"I have woken up
With heart broken again
No smart poetic answers
To the suffering that rages
In places I do not know
No fancy spiritual philosophy
That shields them
When the bombs fall
Just a tiny voice that whispers
The love of peace
Even in the midst of war."
~...
Dos
As of today it's been two years since I first came to reside at the nursing home. And somehow I've survived this ordeal. Of course, many haven't. The average lifespan of a nursing home male species inductee is approximately 6 months. Females typically last 9 months. It's true though, that I...
Fires…::…..
“And if you have ever been abandoned. Be a constant. If you have ever been wrapped up in nights so dark, you could not find your way back home. Be light. If you have ever fallen apart into a thousand, fractured pieces and wondered where on earth everyone has gone. Be present. If...
“Here is a truth you often don’t hear: traumatized women have the potential to become the most powerful people in this world.
The most ignorant members of society call this type of woman “damaged.” But she is the most powerful type of woman there is
What they forget is that survivors have...
Because….music.
Moon river, wider than a mile
I'm crossing you in style some day
Oh, dream maker, you heart breaker
Wherever you're goin', I'm goin' your way
Two drifters, off to see the world
There's such a lot of world to see
We're after the same rainbow's end
Waitin' 'round the bend
My...
Trigger warning. Medical ptsd triggers.
Not a pretty entry.
************
I have worked so hard for years to reach today. YEARS. And years and years…. And years.
I need assistance and I know this. I’ve been rejected left and right from medical community. In SO many ways. Despite mostly...
Updates (without answers)
It's been exactly a month since I've been relegated to (mostly) bed duty… I may have had covid-19 (they didn't test me back then, but they are testing residents and staff now because we have several active cases in our hallway).
I shall make it known that I am...
Quick request ME/CFS friends….
Sharing in support of this brave woman that she hopefully gets the help she needs and deserves. How horrifying in 2023 you have to beg for your life publicly in hopes the hospital makes the right choice when you acquire certain illnesses that are blacklisted...
Monday morning music therapy✨🌹
“Told you we ain't dead yet
We been livin'
through your internet
You don't have to believe
everything you think
We've been programmed
wake up,
we miss you
They call you indigo,
we call you Africa
Go get baptized
in the ocean
of the people
Say reboot...
September 3rd (Sunday)
I've been stuck in bed for the past six days. Something went wrong, likely initiated by my new feeding formula.
I had "the runs" for 24-hours, and ever since, I've felt exhausted, poisoned, and shaky. I sweat profusely when sitting upright. And my bloating and stoma...
Chronic Infection: Extension-A Closer Look (Helpers for Epstein Barr Virus and Other Co-Infections))
So many herbs are multi beneficial in so many ways....that sometimes its hard to remember why society remains mostly focused on a few heroes finding a pharmaceutical that rarely is as extensively beneficial as the herb. We have millions of heroes around us at all times. They mostly don't require...
And to close off this series that i might as well of named Stephen Buhner's brief overview :lol: we will talk about a BRIEF amount of herbs possible to assist with viral and bacterial infections and cytokines.
I decided to do a brief overview because i have multiple bedridden friends that...
I would like to share a passage in Buhner's book on cytokines today...what they are and how they work.
"Cytokines are small cell signaling molecules released by cells that are damaged, cells of the immune system and the glial cells of the nervous system that are important in intercellular...
A energetic palette cleanser for my feed
💙🦋
Cerulean
Blue moon
In the sea
Waiting
But will you
dance with me
Dancing waves
Encompassing millennia
Beyond these crests
That break
There is a flow
That commands…
Commends
Magnetizes
Divests
Unrests
To create
Coming apart
To fALL...
I'm in my chair rolling around early Friday morning looking for a dead body. A corpse. You'd think it's got to be around here somewhere (indeed, I've covered the usual terrain). However, there remain several tucked away spots, places wherein I have no wheelchair access.
Why this in morbid...