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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Journey of a (likely) Sepsis Induced ME/CFS Treatment
- Author Blazer95
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Hi fellow ME people,
this entry has a quick summary wich is intended to be reader friendly for severe ME patients.
I think we all should do this more often to include our severe fellows, if possible.
3 Days ago I underwent the HELP-apheresis in germany. The procedure was quite a ride giving me...
Hi everyone!
Intro:
Since being tested positive for Borrelia 1 year ago I have been lingering around what outsiders would call the "chronic lyme theory".
I have seen multiple people getting better from lengthy antibiotic treatments, and while of course that brings risks - I think being so...
Hi friends, long time no see!
Preparation Appointment at the HELP-apheresis clinic:
I must say my first appointment at the clinic where I will get the HELP-apheresis next week was nice.
He was incredibly careful not to forget anything to explain about this procedure, explaing possible side...
The title was intended to sound this confusing because it portrays my confusion best.
Today on my daily and unreasonably high effort on treating this vietnam war zone of a disease called ME/CFS I stumbled uppon a guy that vlogged about his experiences with INUSpheresis. INUSpheresis is a type...
Today, I woke Up thinking I slept awesome because my Fitbit told so. Needless to say its always risky to make such a bold Statement when you have unpredictable ME.
The watch told me i got 9h of sleep with a solid 2,5h of deep sleep. My HRV was at 45ms wich is very high for me so I thought wow...