godlovesatrier
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Are PET-TSPO and PET-FDG somehow linked with each other, i.e. if I have knowledge from PET-TSPO, can I deduce knowledge from PET-FDG and vice versa?
Could I use knowledge from both to get a better idea of what is going on?
Do those mri scans - are they pointed at the back of the head? So the red bits are either side of the head at the back?
Hi @Pyrrhus
I didn't write that very well. What I meant was the cpet is taking an image of the back of the head? Is that right? This is where I have all of my own inflamation on these two sides at the back. I wondered the other day what this might be caused be and what drugs or drug channels like calcium blockers might be good for treating it. Would microglial inflamation be a potential cause do you think?
Dextro naltrexone seems to get a mention in the Younger trials as a drug for microglial activation.
Like you, I also get some pain and stiffness at the back of the neck. It appears to be somewhat common in ME.
Results from a Ramsay Pilot Study
Not sure if I posted this video before - but also a very good explanation
ME/CFS Involves Brain Inflammation: Results from a Ramsay Pilot Study
When the tissue-resident immune cells in the brain are activated, it is called "neuroinflammation".
When the blood-borne immune cells invade the brain, it is called "brain inflammation".
Could it be both? Immune cells from the blood/body causing activated microglia? Or would that be "brain inflammation"?
The base of the brain headache, much worse upon awakening, especially after deep sleep, has been my most lingering symptom. I have recently been working on increasing B vitamins and have had considerable improvement, but the symptoms do come back intermittently.
"Acute hypocapnia causes hypocapnic alkalosis, which causes cerebral vasoconstriction leading to cerebral hypoxia, and this can cause transient dizziness, fainting, and anxiety."
Thank you for taking the time to reply. The strange thing is that it is the worst after long stretched of very deep sleep.If this symptom is most prominent upon awakening, it might possibly be related to sleep apnea, which is quite different from hypocapnia.
Could tie together cci hypothesis and other onesThe Wikipedia page on Sensory Gating is surprisingly good:
Source: https://en.wikipedia.org/wiki/Sensory_gating
What does anyone think of the Perrin technique Perrin's view that varicosed and malfunctioning lymph is creating a backflow into the lymphatic system in the brain, inflaming and poisoning the brain?@Pyrrhus would s CT-PET be better?
I don't know much about Perrin but my MRI's show calcification in the lymph nodes at the base of my skull.What does anyone think of the Perrin technique Perrin's view that varicosed and malfunctioning lymph is creating a backflow into the lymphatic system in the brain, inflaming and poisoning the brain?
No thanks for sharing. I'll look into that.did you see Perrin himself?Well I've had Perrin technique. I guess Perrin is more closely in line with Goldstein's theories. But they haven't exactly been proven as root causes of ME.
For me it felt like a lot of very expensive sessions and major hassle to effectively get very little reward out of it at all. Plus you could just take redroot americanus, liver and kidney herbs and some other type of lymphatic cleansers to create the same effect. In my opinion which is not backed up by anything!
But that approach is a lot cheaper and quicker etc.