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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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brainstem

  1. sb4

    Ketosis and constantly activated Sympathetic Nervous System

    I have POTS which results in vasoconstriction caused by my sympathetic nervous system being jacked up all the time. I think this has been giving me problems when trying to enter ketosis. When I get in ketosis I notice my POTS is worse, particularly mornings and after meals. What I think may be...
  2. C

    Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients (Thapaliya et al, 2023)

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID patients have overlapping neurological, autonomic, pain, and post-exertional symptoms. We compared volumes of brainstem regions for 10 ME/CFS (CCC or ICC criteria), 8 long COVID (WHO Delphi consensus), and 10...
  3. P

    Brainstem Abnormalities in ME/CFS: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings (Nelson et al., 2021)

    https://www.frontiersin.org/articles/10.3389/fneur.2021.769511/full#h6
  4. Pyrrhus

    Second study might confirm neuroinflammation in ME subcortical brain

    Many of you will remember the landmark Japanese study from 2014 that used PET tracers to detect and image neuroinflammation in the brains of ME patients. Previously, no one had the technology to detect and image neuroinflammation in ME, as standard MRI's are totally unable to detect or image...
  5. Murph

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS

    Neuroimage Clin. 2018;20:102-109. doi: 10.1016/j.nicl.2018.07.011. Epub 2018 Jul 11. Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in chronic fatigue syndrome. Barnden LR1, Shan ZY2, Staines DR3, Marshall-Gradisnik S4, Finegan K5, Ireland T6, Bhuta S7...