These bandwagon protests with people not knowing anything about the issue are not a good thing for the world we live in.
If people want others to rise up, they need to provide actual facts.
Maybe some of you have been able to find the facts?
That's generally true of all things, whether health related or geopolitical. However, I have no trouble believing that hospitals are more likely to be abusing ME/CFS patients than the parents are making it all up and the patient just needs to be sectioned and then they'll improve.
Medical 'care' for ME/CFS is disgusting and inhumane. It needs to change - not just for one or two horribly abused patients, but across the board. I'm not sure I've ever even heard a story of someone with moderate to severe ME/CFS who was treated well at a hospital.
So the facts are that most physicians view ME/CFS as either a mild psychiatric condition, or something physical but non-serious. I would die subject to the amount of stimulation in a hospital - therefore, I'd rather die at home than put myself in their care. I worry that if I ever had anything treatable, I'd have to calculate the risk/reward.
The medical establishment has put us in this position. Their BS when they tell you to call 911 in an emergency and such - yet they have no trouble being punitive and cruel when they feel we don't deserve to be there.
To do a protest at the hospital by gathering keyboard warriors and potentially disrupt medical treatment and care for the entire hospital without knowing both sides of the story sounds irresponsible to me.
I agree this is a challenge in all specific cases, which is why it's even more frustrating that we don't care for people. I don't have to investigate if someone is faking their HIV diagnosis, because we don't (anymore) need to protest that people with HIV are being ignored.
But until they take ME/CFS and related conditions seriously and actually care for us, what else are we supposed to do? Suffer and die in silence?
