Hi everyone,
Starting a new blog entry on it because … well I just am. I feel like posting a song. I’ve mostly not been able to listen to music past month. But, a song will do right now.
Things have continued to be rocky with me. My family left town for 5? Days and I was on my own. After all of the progress I’ve made past few years, this was rather challenging given my state of health currently. But I wasn’t going to ask him to cancel his vacation with his family bc it’s always something with me.
I began having increasing issues again we needn’t relive late last week. My new GP said i unfortunately needed to be back at er. But, I tried hard to tough it out another two days… until I was severely unwell. My husband snd a friend arrived on Saturday to me quite listless and unwell. 100 degree fever. 4 weeks in!!!!! So, they called an ambulance. Yet. Again. Because apparently this is what we do now. Since so few other options exist for me.
In good news, the pneumonia is practically gone. Lungs look pretty good he said. I do have something called a hemidiaphragm. Sounds like elevated and weak after weeks of vomiting and coughing. I also have pleurisy now. Plus long covid (although I’m not attaching to that label just yet), severe dysautonomia and severe dehydration. Again.
My lactic acid was almost up to 3. Er dr didn’t like that. But 3 hours of fluids brought it back down to 2 so he believes it’s related to unknown form(s) of dysautonomia. It’s not pots. My ptt? And some other clotting f tot were a bit elevated. Could be dysautonomia related. Wbc and that whole gang of misfits still elevated.
Saturday was a very difficult and bad day. I lost much functioning that day. Or maybe before. Everything is a blur. Emt had to do a med tarp as I couldn’t even sit up. Tachycardia was out of control for days. Fluids assisted. Again. To the rescue. Why they are so hard to get, I don’t know for someone like me.
Dr said I’m to lay low for 7-10 days 😞 I’m mostly not able to get up but it’s not completely working out that way. Pooping in bed is terrible work when you are on your own. So… trying hard to use. I’m mode or toilet for these situations. Sigh.
It’s been triggering. After gaining so much. Like sand, I lost it all so quickly again. I’m trying to keep my head up. Many ugly things rearing their heads. Lungs have a ways to go. I’m so grateful pneumonia gone but not exactly having fun with what remains. Weird glue like stuff wrapped around my voice box and parts of lungs and coughing and weird stuff every single exhale. Serious shortness of breath too upon the smallest exertion. Plus just so many irritated cotton feelings in lungs every single minute. Hate it. I’m grateful for my o2 though. But this still is unsettling and NOT fun.
Er de said he advises a large hospital as soon as possible as I have rare things going on his hospital doesn’t test for.
GP being amazing. Messaged today asking me when I can get up to Mayo Clinic. She also ordered home health care and home iv fluids!!!!!! Now…. If I can get insurance to cooperate. And get my husband to get me our new insurance cards than began yesterday 😜
Anyways, I hope you guys are ok.
I’ve been in a really scary place.
Thanks to everyone out there sending me messages, texts, love, good energy, prayers etc. it’s been very beneficial to me. It’s sometimes really scary doing things like this mostly alone at home.
Sending y’all ❤️♥️💗
Intense eclipse passageway we are in.
Be gentle with yourselves.
Says the girl that just needed 7 bags of fluids past 3 weeks 😅 but you catch my gist! 😜
And a song
Let it go
Let it go
Let it go
Starting a new blog entry on it because … well I just am. I feel like posting a song. I’ve mostly not been able to listen to music past month. But, a song will do right now.
Things have continued to be rocky with me. My family left town for 5? Days and I was on my own. After all of the progress I’ve made past few years, this was rather challenging given my state of health currently. But I wasn’t going to ask him to cancel his vacation with his family bc it’s always something with me.
I began having increasing issues again we needn’t relive late last week. My new GP said i unfortunately needed to be back at er. But, I tried hard to tough it out another two days… until I was severely unwell. My husband snd a friend arrived on Saturday to me quite listless and unwell. 100 degree fever. 4 weeks in!!!!! So, they called an ambulance. Yet. Again. Because apparently this is what we do now. Since so few other options exist for me.
In good news, the pneumonia is practically gone. Lungs look pretty good he said. I do have something called a hemidiaphragm. Sounds like elevated and weak after weeks of vomiting and coughing. I also have pleurisy now. Plus long covid (although I’m not attaching to that label just yet), severe dysautonomia and severe dehydration. Again.
My lactic acid was almost up to 3. Er dr didn’t like that. But 3 hours of fluids brought it back down to 2 so he believes it’s related to unknown form(s) of dysautonomia. It’s not pots. My ptt? And some other clotting f tot were a bit elevated. Could be dysautonomia related. Wbc and that whole gang of misfits still elevated.
Saturday was a very difficult and bad day. I lost much functioning that day. Or maybe before. Everything is a blur. Emt had to do a med tarp as I couldn’t even sit up. Tachycardia was out of control for days. Fluids assisted. Again. To the rescue. Why they are so hard to get, I don’t know for someone like me.
Dr said I’m to lay low for 7-10 days 😞 I’m mostly not able to get up but it’s not completely working out that way. Pooping in bed is terrible work when you are on your own. So… trying hard to use. I’m mode or toilet for these situations. Sigh.
It’s been triggering. After gaining so much. Like sand, I lost it all so quickly again. I’m trying to keep my head up. Many ugly things rearing their heads. Lungs have a ways to go. I’m so grateful pneumonia gone but not exactly having fun with what remains. Weird glue like stuff wrapped around my voice box and parts of lungs and coughing and weird stuff every single exhale. Serious shortness of breath too upon the smallest exertion. Plus just so many irritated cotton feelings in lungs every single minute. Hate it. I’m grateful for my o2 though. But this still is unsettling and NOT fun.
Er de said he advises a large hospital as soon as possible as I have rare things going on his hospital doesn’t test for.
GP being amazing. Messaged today asking me when I can get up to Mayo Clinic. She also ordered home health care and home iv fluids!!!!!! Now…. If I can get insurance to cooperate. And get my husband to get me our new insurance cards than began yesterday 😜
Anyways, I hope you guys are ok.
I’ve been in a really scary place.
Thanks to everyone out there sending me messages, texts, love, good energy, prayers etc. it’s been very beneficial to me. It’s sometimes really scary doing things like this mostly alone at home.
Sending y’all ❤️♥️💗
Intense eclipse passageway we are in.
Be gentle with yourselves.
Says the girl that just needed 7 bags of fluids past 3 weeks 😅 but you catch my gist! 😜
And a song
Let it go
Let it go
Let it go
