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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Absolutely Bizarre / Sympathetic Vibrational ShockRufous made me think of this because right after you posted this she liked an old post of mine where I talked about bamboo conducting electricity... -
Absolutely Bizarre / Sympathetic Vibrational ShockI still need to replace the amp for the fender stratacaster which was evacuated, and my husband yelled at me about the amplifier as I was putting... -
Absolutely Bizarre / Sympathetic Vibrational ShockI understand....I did not replace most of my life after it all came down. I felt I did not need to, nor was it OK to do so. However, somebody...
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Absolutely Bizarre / Sympathetic Vibrational ShockI understand this mentality. Part of me still wants to purchase memories (in the sense that you mention), or outmoded music gear, books I already... -
Absolutely Bizarre / Sympathetic Vibrational ShockI just hallucinated on that photo, before I had clicked on it and it was small: it looked like a man was pouring water into the red tubes. Only...
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Home is a tent right now. A medium sized tent, sitting in a patch of woods in the Pacific Northwest. Alders, maples, cedars, and other various trees shelter us from the world outside. A world that has now become too toxic for us to live directly in any longer.
Growing up I had seen my mom...
After living in these woods for five years, I had thought I had seen just about everything nature would throw my way. I have seen four foot snows dropped in three days, rain torrents that last for weeks without more than the briefest of breaks, and winds rattling the tree tops around me in a...
Overlooking the house I am building is a rock. A big chuck of granite unearthed from the very place my house now stands.
In the afternoon after the sun has warmed the surface with its loving rays, this stone feels like home, warm and inviting. It doesnt matter if I sit on it with feet...
"Advocate, I'd like some of yours too if you're reading this."
Hi Jen,
Sure. I'll contact you privately, and make arrangements to send you some. I sent some to Angel, and they survived and are apparently thriving. (She sent me some excellent photos.)
I take good care of my grains and...
In 1993, my neighbor said I was the sickest person she'd ever seen live to tell about it. Most people have a flu story, a sick story, a food poisoning story, a once-or-twice-in a lifetime experience that is over in 3 - 7 business days. Mine has sort of never ended. Although I believe I was...
Its my birthday today. I am now 54 years old.
And still recovering from CFS. Both in the long term (17 years and counting) and in the short term, from a crash that started about a month ago.
I had been hoping that with better health this year, that this couldnt happen anymore. And now I...
September 3rd marked Ncubators 4 month milestone. And then I had a crash.
We chronics use this word to indicate an ugly relapse into old symptoms, lasting anywhere from a few days to a few weeks to months to years depending on the crash.
You never know till you come out of one, what...
In Case you don't know the name of Dan Millman, I would like to introduce you to him. He has great Insight & Wisdom. And I very much admire his middle way approach to life. I have some of his books & his DVD called the Peaceful Warrior. If you like what he has written below, you might like...
A bit of history in the first couple:
OF PEOPLE & PLANTS The Autobiography of Europes Most Celebrated Herbal Healer by Maurice Messegue - (born 1921)In a remote French village in the province of Gascony, the young Messegue learned from his father the plant lore handed down by generations of...
Having this condition for 32 years, I've had a LOT of time to be alone with myself and observe my inner process--my mind and its assorted little insanities. :cool::confused::(:mad::p:p:eek:;)
When I first became ill in 1977, at age 20, most doctors did not even know what an immune system was...
I am really, really curious on this one. I have been reading many of the treatment regimes with great interest. Many of them are both complicated & way over my head.
I admire so many of you, in your understanding of these deficiencies & bodily dysfunction attributed to ME/CFS and FM...
CDC/CFSAC BLOGS #2
International Workshop - Clinical Management of CFS
The aim of this workshop (to be held summer 2009) is to establish a collaborative international consortium of investigators who will present and discuss evidence- and practice-based findings related to the treatment, and...
Sometimes I think I'm okay, I'm going to make it, this isn't so bad, & sometimes I think, I'm only trying not to die every day, & this might be the best it will ever be. It is hard to be the one on the list that no one knows what to do with, even the professionals & the experts. This is one of...
(An extract from my diary early August 2009, with a few words of explanation tacked on)
Pain & Suffering.
In the early hours of last Wednesday morning (5th August), I awoke bathed in perspiration and drenched in the most unbelievable pain imaginable. This was it, I thought. This was the...
Not only are the 38 Bach Flower Remedies free from side effects & inexpensive, they are simply administered, even to those most debilitated (and unable to take harsh drugs & other invasive treatments).
Everyone of us is a healer, because every one of us at heart has a love for something, for...
What is the Paleo Diet ?
The paleo diet is simply the hunter-gatherer diet of the Paleolithic era (ie before the Neolithic age when man became agriculturalists).
Our Paleolithic ancestors were lean, fit and free from heart disease and the other ailments that plague Western countries. They...
A year ago I tried examining the question of why ME/CFS patients have been so unable to advocate for themselves effectively, particularly in the arena of fundraising. Except I did not find my thoughts particularly enlightening, even as I have continued to feel there are good reasons to explain...
Why I like birth? Everything to do with birth? Because it feels like a do-over. Every birth I've been to has been special, each one different, & I've felt lucky & honored to be there. Like witnessing a re-do of my own life. At a birth, right before the baby is born, time stands still, & you...
THE CDC/CFSAC BLOGS #1
Dr. Ken Friedberg, board member of the IACFS/ME, just reported the first documented case of a person coming down with chronic fatigue syndrome (ME/CFS) as a result of getting the swine flu virus. This is what he said:
A Hard Hit Group Swine flu is often innocuous...
I woke up Tuesday with a sticky despondency I have not felt in a very long time. It was early -- that is, in Michelle-world, 1 pm -- as I had an appointment with my primary care provider to discuss the lower right abdominal pain I've been having for five years. Except I knew there was little...