A.B.
Senior Member
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At the time of this post, Kenny de Meirleir diagnoses one or multiple bacterial infections in nearly every ME/CFS patient he sees and has been doing so for several years. This conclusion is based on my time as member of a forum for patients of de Meirleir where I had the chance to see the diagnoses and treatment plans of other patients.
These diagnoses are in stark contrast to published research which shows no evidence of such high prevalence of bacterial infections in ME/CFS patients.
I have repeatedly asked supporters of de Meirleir to explain this massive discrepancy but have so far not gotten any real answers. I am hoping to finally get some answers in this thread.
If you are a patient of de Meirleir and knew about this discrepancy, why did you choose to trust him?
Edit: some people are challenging the idea that de Meirleir diagnoses one or multiple bacterial infections in nearly every ME/CFS patient. I reviewed 30 cases in the aforementioned forum and in 21 cases the diagnosis was explicitly a bacterial infection (almost always lyme disease). In 7 cases the patients did not disclose the diagnosis but where prescribed antibiotics, in 1 case EBV was diagnosed, and 1 case no diagnosis was made since the patient already had a lyme disease diagnosis from a different doctor.
These diagnoses are in stark contrast to published research which shows no evidence of such high prevalence of bacterial infections in ME/CFS patients.
I have repeatedly asked supporters of de Meirleir to explain this massive discrepancy but have so far not gotten any real answers. I am hoping to finally get some answers in this thread.
If you are a patient of de Meirleir and knew about this discrepancy, why did you choose to trust him?
Edit: some people are challenging the idea that de Meirleir diagnoses one or multiple bacterial infections in nearly every ME/CFS patient. I reviewed 30 cases in the aforementioned forum and in 21 cases the diagnosis was explicitly a bacterial infection (almost always lyme disease). In 7 cases the patients did not disclose the diagnosis but where prescribed antibiotics, in 1 case EBV was diagnosed, and 1 case no diagnosis was made since the patient already had a lyme disease diagnosis from a different doctor.
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