Mimicry
Senior Member
- Messages
- 179
Hi! I'm looking for ideas what to try next re: supplements for suspected small fiber neuropathy. I have had burning pain, buzzing and tremors in my hands, feet, legs and arms for a decade but it has become worse over the past couple years (perhaps due to covid). I had a skin biopsy taken on November but haven't got the results yet. I also had a brain MRI taken last March because of my chronic migraine but it was clear so MS isn't likely. I have been on pregabalin for back injury related pain for several years and it takes the edge off the pain and stops the worst paresthesias and shakiness but it's still miserable.
As for the supplements I'm currently on alpha lipoic acid 600 mg, riboflavin 800 mg (for migraines), benfotiamine 600 mg + thiamine 150 mg, N-acetyl glucosamine 700 mg, sodium butyrate 1000 mg, vit C 2x500 mg, vit D3 100 mcg, magnesium 500 mg. I've been taking this particular combo for a month now (riboflavin seems to help the migraines a tiny bit) but I've already been on benfotiamine, butyrate, NAG and vit C for 4 or 5 months and vit D + Mg for years. I've also taken alpha lipoic acid before for months at a time and a couple years ago it seemed to help my pain issues but not so much anymore. I've also taken L-carnitine, ALCAR, arginine, NAC, malic acid, tyrosine, Q10 (varying doses 150-1000 mg/day), NADH, PEA, fish oil, vit A, E and K, TUDCA, taurine, choline, BCAA's, L-theanine, B complex, 5-HTP, GABA, iron, lactoferrin, cumin and some other herbs. And I take salt water daily. There are probably others too, these are just on the top of my head.
As you have probably deduced by now, I'm getting a bit desperate. Any ideas what to try next? Any particular combinations of the already tried supplements that I should revisit? I'm in the same boat as most other ME sufferers in that many supplements work for a while, from a week to two months, and then stop working. I had a couple good short periods last year but they all dried up and now I'm in excruciating pain again. I'm planning to try a estrogen balancing supplement that I've been eyeing on iHerb because I'm pretty sure some of my problems stem from hormones but I have no idea if it will do anything for the neuropathy.
I still kinda wanna try because I have had good experiences with supplements before, but I'm wondering if it's time to stop trying them altogether.
As for the supplements I'm currently on alpha lipoic acid 600 mg, riboflavin 800 mg (for migraines), benfotiamine 600 mg + thiamine 150 mg, N-acetyl glucosamine 700 mg, sodium butyrate 1000 mg, vit C 2x500 mg, vit D3 100 mcg, magnesium 500 mg. I've been taking this particular combo for a month now (riboflavin seems to help the migraines a tiny bit) but I've already been on benfotiamine, butyrate, NAG and vit C for 4 or 5 months and vit D + Mg for years. I've also taken alpha lipoic acid before for months at a time and a couple years ago it seemed to help my pain issues but not so much anymore. I've also taken L-carnitine, ALCAR, arginine, NAC, malic acid, tyrosine, Q10 (varying doses 150-1000 mg/day), NADH, PEA, fish oil, vit A, E and K, TUDCA, taurine, choline, BCAA's, L-theanine, B complex, 5-HTP, GABA, iron, lactoferrin, cumin and some other herbs. And I take salt water daily. There are probably others too, these are just on the top of my head.
As you have probably deduced by now, I'm getting a bit desperate. Any ideas what to try next? Any particular combinations of the already tried supplements that I should revisit? I'm in the same boat as most other ME sufferers in that many supplements work for a while, from a week to two months, and then stop working. I had a couple good short periods last year but they all dried up and now I'm in excruciating pain again. I'm planning to try a estrogen balancing supplement that I've been eyeing on iHerb because I'm pretty sure some of my problems stem from hormones but I have no idea if it will do anything for the neuropathy.
I still kinda wanna try because I have had good experiences with supplements before, but I'm wondering if it's time to stop trying them altogether.
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