Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
MTHFR isn't a gene known to go missing, and the mutations on it are extremely common. It don't involve the absorption of folate, but rather the transformation of it from a precursor.I have a missing gene: MTHFR which does not allow for absorption of folate.
@Ewa, @ patster
I too am interested in those questions.
UK Consultant I visited did not test for viral levels nor CK before treatment, but am taking 3x400 acyclovir daily.
Would have preferred more testing before being treated.
Bad herxing so eased dose for 2 days. Hopefully improving.
Regarding this post, wondering what you mean by long term? What is the window for antivirals? I’m asking because I was diagnosed 10 years ago and had good response to antivirals. I relapsed two years ago and am not finding the antivirals to be as effective.I saw her & she gave me the impression there is not much she can do if you're long term sick because the window for antivirals is closed
No. Checks for EBV. My dx was I think activated EBV and sold me some vitamin.I'm thinking about going to see dr Susan Levine.
Does she check nk cells function and cytokines? Does she prescribe something to regulate the immune system?
Thanks.