Hi,sorry for not having been around for a while. I have quite some updates/progress. First of all, I have managed to find out a big piece of my puzzle, the main reason apparently why all my lyme's treatment did not really go anywhere. Tapeworm! Gigantic! Lost 17kg in a short space of time and doctors could still not figure it out. Well, in the end I went to see a doctor who works with alternative testing methods (like acupunture, bioresonance, etc, etc). He diagnosed and prescribed. Oh boy, for one week there was only worm coming out of me. Went back, he retested, worm still there. So I took a new dose, maximum strenght. Another 1.5 weeks worm coming out. Just gross! He tested me again, all gone. Still tested positive for filaria (Asain souvenir) and some other parasites. Been on Albendazole, Mebendazole, Prazquantel, Yomersal and Invermectin. Apparently all clear now (almost). Feeling much (!) better. Digestive system still in the gutter, malabsorption. Am now on Minocyclin plus teasel to treat lyme. According to the alternative testing, works very well for me. Actually, it does.
The scary part is that the tapeworm was undetected on each and every single test I have done. No blood, no stool, no MRI, no ultrasound, nothing! But it was there, big time.
Have also now changed gear a bit on supplementation. I have done the Metamatrix and all genetical testing on CYP, GST, MDR1, SOD2 etc, etc. Basically a few polymorphisms. MDR1 is reduced, which means cellular detox is impaired (no news there). SOD2 also heterocygot reduced, so am dealing with increased oxidative stress, also no news.
Have now changed my supplementation regime to what the Metamatrix book is recommending for me. Evening promrose oil, carnitine fumarate, a compunded multi vitamin, methylcobalamin, active folate, 5mg of biotin a day, active B2, NADH,etc.
Mulivitamin to include just broad spectrum, trying not to focus on one or the other. Apart from that, I got a FIR sauna and have now changed to tons of freshly squeezed green veggie juice and wheatgrass shots (2-3 a day). Additional coconut water. Works just great. A lot of good vitamins.
Went through my chelation protocol and got rid of all the metals. Some Aluminium is left, which I am now chelating with malic acid. Turned out, one of my ceramic inlay tooth was for some reason leaking aluminium and nickel. Docs tested that in the saliva and levels before provocation were constantly high. Got the tooth localosed through kinesiology and removed inlay. All metals down now, apart from the igher aluminium. Since my GST M1 is functioning, I have hopes to get rid of that in no time.
Thyroid and adrenals, progesterone big issue. Have decided to leave that till the end and see where I get after my antibiotics have finished, my gut gets restored. If there is still a problem left, I hae to clean up that mess to.
Had huge lactate, almost no pyruvate. High dose of carnitine corrected that and I am takining a powder who deals with high acid in blood.
As far as diet is concerned, I ran another food intolerance test and am now avoiding this food and milk plus guten for a while. I was really confused about what I can eat, as according to my SOD2 and my lactate, low carbs. According to my insulin resistance as well. According to my high cholesterol low fat and according to my low BH4 and CBS upregulation low protein
So now I am eating just balanced! A bit of everything, freshly cooked (steamed) with a lot of nuts and seeds, flax seed oil. Works great. trying to eat a few meals a day, so to avoid insulin spikes.
Hair loss stopped am slowly putting on weight again. Have restarted full time work, albeit taking it slowly. Supplementing with BH4, levels rising
New blood test on minerals shows still a way to go, all very low levels, despite iv treatment. So gut is now main priority. One step after the other, but direction is the right one!