In an effort to research my way through weither I should ultimately get the HELP-apheresis or not I have looked out for patients feeling better/worse/neither. I thought I share the results with everyone.
Gained Benefit |
Patrick Ussher from Phoenix Rising reports being 20-25% better YouTube Video |
User Katty2k reports feeling “amazing” after just 1 HELP apheresis, 1 HBOT and 1 round of IV vitamins Reddit comment |
User draconefox reports a 10% increase in energy after apheresis therapy. Reddit comment |
User kdnyfilm reports feeling slightly better after 4x help apheresis but it may be the mediterranean sun of cyprus he stated. Reddit comment |
User Embarrassed Mess reports „It helped me a lot” Reddit comment |
User allknewthings reports “yeah helps” Reddit comment |
User eddihunter reports being much better Link lost sorry |
User friends of the sun reports having great result but feeling worse again with virus reinfection: Reddit comment |
Long Covid patient Neil Robinson reports feeling better after HELP-apheresis YouTube Documentation |
Marek Fabrowski reports feeling better after HELP apheresis aswell: same documentation as above. |
Sarah Sacher, ME/CFS patient, reports feeling better after HELP apheresis: YouTube Video |
User just-a-simple-song claims he and his wife feels "much better" after doing it: Reddit comment |
User Outside-Clue claims he has felt an 20% improvement, that only lasted 3 months however. Reddit comment |
User FinRinTin reports cognitive improvements after HELP-apheresis Forum Post |
User SWAlexander reports feeling "saved" after Immunoadsportion wich is a different type of apheresis: Forum Post |
Got Worse |
User Tauri_123 reports feeling worse after only one HELP apheresis: Reddit comment |
User avernamethyst112 reports going from 50% to 5% from Apheresis and still isn’t recovered: Reddit comment |
Atleast one ME/CFS patient got so worse after apheresis that he commited suicide. https://forum.sickandabandoned.com/...ient-recovery-beate-jaeger-and-colleagues/179 |
User Tauri_123 reports the practices of the cyprus clinic as very dangerous leaving multiple people bleeding from triple anticoagulation: Reddit post |
User luxintenebrislucet feels "at his lowest" after HELP-apheresis. It is unclear weither he ever returned to baseline: Forum Post |
Neither:
User dhitchen reports no benefit and no harm, but doesn’t regret trying it:
Reddit Post
User dankeen1234 reports achieving nothing, reporting no harm either, but wasted money:
Reddit Post
User odd_resist7051 reports no benefit but no harm either, but doesn’t regret trying it.
Link lost sorry
User Martin aka paused ME seemed to have no effect on HELP-apheresis. While I cant find his statement about it other users have been talking about him getting no benefit.
Better from HELP: 14 ME or LC Patients
Better from Immunoadsoprtion: 1 ME Patient
Worse: 5 Patients with 1 ME/CFS commiting suicide afterwards...
No harm, no benefit: 4 Patients.
Disclaimer: The true risk of side-effects may not be displayed correctly by this list. Stay careful fellow ME warriors.
While this looks very pro-apheresis i want everyone to keep in mind that it brings the risk of significantly worsening..
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