Okay, time for an update. Last night, not only did I realize that I STILL have not have had PEM, my burning legs now feel normal.
Although I haven't really done anything that was 100% certain to cause PEM. I thought Mother's Day preparations might, but I was able to break it up over two days so it was pretty simple. I definitely am NOT symptom free, pushing it mildly will give me poor sleep and feeling under the weather, but not what I am used to.
I've been given a dose of medicine, and I will continue to take it. And THIS time, I'm being smart.
Last time I got a noticeable benefit from Hawaii, I abused it. It was necessary, I couldn't avoid it. Within a week of returning from Hawaii, my brother died of late stage cancer and I had to be part of funeral preparations and clearing his house. My house purchase closed the week after that and then another brother and I painted the house interior. I was up and down from a 5 gallon bucket so many times per day that I had muscle pain from muscle over use. That felt good! Everyone was surprised at how much I was able to do. Then I moved in all the important stuff to live. Then I decided I was doing so well I would explore the private beach 225 feet below my house (biggest mistake). Then I moved the final truck load of non essential stuff to my house. Then I moved the corporate office. And on and on..... I crashed, and I crashed hard. That was when my inability to stand for more than a minute or two started. And yet I still had to push. Every weekend something HAD to happen, and I had no excuse to not do it. So I continued, even though I could barely take care of simple things. And I have not been able to even cook a simple meal after work without lack of sleep, burning legs, and getting PEM. Until now.
So I will repeat this again, so I don't forget it.
I've been given a dose of medicine, and I will continue to take it. And THIS time, I'm being smart.
(I'm still looking for valid explanations or possibilities why my PEM stopped in Hawaii, even though I was massively overdoing it for 48 hours cleaning and moving my daughters stuff- and how it still continues to help me back in Seattle. PEM just seems to have vanished.)