LisaGoddard
Senior Member
- Messages
- 284
Having been housebound with ME/CFS for over twenty years, I was recently diagnosed with autism and I now have hypermobility assessment tomorrow! I have always been hyperflexible and at the grand age of nearly 60 I can still lots of weird things with my joints and limbs (despite absolutely avoiding any stretching exercises as it affect my joints)
Over the past week, I have been spending time wearing a soft cervical collar as a way to test out the cranial instability theory. I've found to my utmost surprise - shock- it makes a huge difference to my day. I can think clearly and I no longer feel exhausted after an hour. Why is that? Should a soft cervical collar really make such a difference? Should I mention this to the consultant tomorrow? Can I continue to wear it? (I've read that is it bad for the muscles)
Think of me tomorrow (pray if you do) as I've had terrible experiences with being dismissed by medical professionals. I really want to get to truth and remain calm in the process.
Over the past week, I have been spending time wearing a soft cervical collar as a way to test out the cranial instability theory. I've found to my utmost surprise - shock- it makes a huge difference to my day. I can think clearly and I no longer feel exhausted after an hour. Why is that? Should a soft cervical collar really make such a difference? Should I mention this to the consultant tomorrow? Can I continue to wear it? (I've read that is it bad for the muscles)
Think of me tomorrow (pray if you do) as I've had terrible experiences with being dismissed by medical professionals. I really want to get to truth and remain calm in the process.