FUNCAP55 Assessing Functional Capacity in ME/CFS

[BrightCandle]

A Norwegian research group has developed a much better functional capacity questionnaire which doesn't have the usual mental health biased language. It was mapped to severity so you can get a good measure of where you are from just the questions.

A community member called Rafa has developed a web page that makes this very easy to do and is easier than adding it up yourself and using the supplement to the paper.

You can do the test here: https://raffbenato.github.io/funcap55/

You then map your overall score to this chart found in the study.

The paper: https://www.preprints.org/manuscript/202309.2091/v1

I get 2.10 (Severe)

 

[Rufous McKinney]

I scored 270

1/2 way thru the test I did not want to continue, and therefore, I pushed.

 

[Rufous McKinney]

1/2 way thru the test I did not want to continue, and therefore, I pushed.

If a topic is super engaging, my brain might be willing to engage in it, more fully.

There is something about the Brain inflammation that feels very ADHD.

 

[leelaplay]

This is so useful. Thanks Rafa! I scored 144. The FUNCAP55 is the most accurate functional capacity questionnaire I've seen in 20+ years. It would be great if the Norwegians did this as a published addendum, and added a further step where one's results are plotted on the ME Severity inl HC chart. Then physicians could use it in their office, or patients could bring it to their doctors.

 

[BrightCandle]

This is so useful. Thanks Rafa! I scored 144. The FUNCAP55 is the most accurate functional capacity questionnaire I've seen in 20+ years. It would be great if the Norwegians did this as a published addendum, and added a further step where one's results are plotted on the ME Severity inl HC chart. Then physicians could use it in their office, or patients could bring it to their doctors.

I think its got a few issues still but I agree its the least biased one I have seen. I have some issues around the distinction between 0 and 1 (there is a gap for PEM lasting weeks or is 0 just worse than 1) and 5 to 6 (since everything has a cost just not necessarily at what is reasonable within a day). I also think a few of the questions compound problems, working from home and travelling might be very different as is the type of work. Then there are things like parties which is under sound but one compounding factor is getting to the party and what type of party it is and whether someone can sit or lay down. Still for all its little holes that might bias an individual score one way or the other I think its the best attempt I have seen at producing a usable functional capacity questionnaire.

 

[maddietod]

This is so much better than every other test I've tried. I like that I could skip questions that aren't relevant. This probably skews results, but I like not being forced.