I don't know if I'm using the board wrong or my post was deleted . I'm trying one more time.
I'm starting IVIg , I have a lot going on like everyone else here but large and small fiber neuropathy and a mast cell disorder . I wanted to ask how long it took IVIg to work ? I have some concerning blood work and am not too sure I'm going to be able to handle IVIg . But things are so bad that whatever the risk is, I have to take it.
Were you exposed to black mold ? Did all your symptoms resolve? What I'm really curious about are the symptoms because I've read exaggerations and reading your posts , I can tell you had a lot of harsh symptoms so maybe IVIg might help me too . I feel very drugged and confused , a lot . It's not brain fog , I feel all out drunk or drugged and it feels very bad . I have horrible anxiety to the point it's terror . Anything I eat , I get very ill so I don't know what my "triggers" are , they seem to be all food, smells, sounds, products , it's like I'm missing an immune system and skin and I don't understand it. I had none of these symptoms before . No , I don't recall strange allergies as a child or any of that the dr's try to convince you of . I was perfectly normal and I thInk black mold and being blasted with radiation did something terrible to my body. I keep declIning, it's like I have copd but how? I have dermatographia. I had no food allergies in my life but all food does horrible things . I have constant tinnitus . My neck is very rigid and painful GI issues are severe. Iron levels make no sense , it trends downwards from 90, 70, 50 then it's a 150 and my saturation is like i am absorbing too much iron but my ferritin is depleted . Rbc is low .
Anything you can share would be appreciated and I'm sorry if I'm not using the board correctly . I have severe cognitive issues and I'm new here and I can't even remember to hit post , my 5th try ...