Hope_eternal
Senior Member
- Messages
- 286
I’m at the end of my rope y’all. Today I took my son to see a doctor who’s supposed to be an expert in CFS and left there feeling deflated and sad. I had such high hopes I should’ve known better. He suggested we put my son on a stimulant called provgil (modafinil). That sent off red flags. Not sure I feel comfortable with that. I ask if stimulating his body could further crash him and he told me he thinks my son’s issue is a brain issue. What? So I’m supposed to put my son on a stimulant because he thinks it’s a brain issue? He didn’t even look over all the records we had. He also said he needs to have a sleep study which I’m ok with but said he thinks that’s the main problem and once we get that straight he will get better Idk 🤷♀️ my brain hurts, my heart is heavy and I just feel defeated.