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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am not surprised! It is no fun to feel sick like that. I am so sorry you get that unremitting symptom.I feel like dying when it’s severe, to be honest.
At one point I had it almost every day. That went on for months. Particularly during the first year. But I was fortunate that most of the time I was able to eat in spite of it as it wasn't a constant thing, would often respond a little to my "home remedies" and would often ease up later in the day.You are so lucky you have nausea so rarely. It’s the worst of all symptoms.
I am sorry your cousin had to go through this suffering. It must have been horrible for her, as I know from experience. Do you happen to know what kind of hormonal problem she had? I thought about it several times to go to an endocrinologist, but coronavirus put a halt to all my plans. Now that you say it, I will arrange an appointment asap.Dear @Kalina, I am sorry you passed through all this. I know how 24/7 symptomps prove to be terrible, because they don't leave you a second of peace (I have in particular constant severe urethral burning and urgency).
Don't know if this will help ...
I have a young cousin who has been suffering of chronic nausea for one year, until she discovered it was caused by hormonal troubles (and a bit of neuropathy). An endocrinologist helped her and now she's fine.
This is only her experience ... Hope it will help you!
Kalina i send my heartfelt sympathies. 12 years ago aged 70 i had a flue shot and was hit by ME/CFS not long after. Vomiting and diarreah plus arrythmia unable to stand unaided, one year bed rest and daily shots B12 and Magnesium. I lost 4 stone in as many months. But my dear girl there is light at end of thhe tunnel! I discovered Lorazepam *1 mg. which stopped the nausea! Google it. It was a miracle I have relapses a week in bed now and then but it is nothing like as bad as that first year! It will pass....feed your immune system good stuff. Read book Plague by Dr Judy Mikovitzs. Currently back in bestsellers list in US. She wil tell you what your condition is and how you got it. XxI suffer with 24/7 nausea, sometimes vomiting, stomach pain and pancreatic inflammation. I also have high coxsakie B antibodies. I read that nausea is a common symptom among CFE patients. What’s the pathophysiology behind this symptom? What is to blame, the stomach, the pancreas or the brain inflammation? Does it ever go away? Because it drives me crazy, it has been a year and I can’t endure the shock of waking up so nauseous anymore.
Now the weird thing is that whatever "bug" I caught in March 2018 which started this whole thing, was never revealed. I didn't go to the doctor until the 4th week of it. He did a full health work-up but no nose/throat swabs. I asked about that, but he said swabs wouldn't show anything by that stage anyway.
I'd never had throat symptoms.
Bloodwork revealed nothing at all untoward and no signs of infection; only some very slight anomalies re: electrolytes. Those were not even bad enough apparently to warrant a "red flag" but the lab did mention them.
At the time I endlessly searched for clues as to what virus may have caused the weird "flu-like" illness (yes, flu-like....but not quite.) It was constantly afebrile, with no respiratory symptoms, just an endless (and then recurring at intervals) malaise just like I had flu.
So -no fever and a lack of other classic symptoms according to each infection, meant the illness matched no viral profile including the whole list of enteroviruses, and believe me I examined every single one. Any kind of flu was almost ruled out as there were no respiratory symptoms. Nobody knew what the heck it was.
What I had, which happened suddenly at a certain time on a certain date was:
shakiness
weakness
nausea
slight but persistent head pain over right eye
a "fluey" malaise (a constant feeling of the first day of coming down with flu)
heart palpitations
sudden exhaustion
upset lower gut (in the 4th week)
loss of appetite (and sometimes incredible ravenous hunger and food cravings for canned sardines, butter, bread, chocolate, eggs....very often in the middle of the night, alternating with nausea.)
exercise intolerance
Sleep disruption
occasional "tight chest" which would pass within minutes, with some sharp chest pains.
weakness in leg muscles and sometimes complete spasticity in legs which brought me to the ground literally for about 3 mins. each time.
And a feeling of "sentimentality" where things would bring me to tears so easily. (music, movies, memories etc) This alternated with an empty feeling where I found it hard to connect with anything heart-felt, and instead felt a bit robotic, just enduring each day and plodding on with things I had to do.
(Heart checks were all okay) It was not a cardiac infection either, apparently.
So -what virus caused all that....I don't know. But it came on suddenly out of the blue and I had always been fit, strong, well, healthy, athletic, had a strong digestion....etc
My doctor also grilled me about possible clues as to it being poisoning of some kind, but that was kind of ruled out. Again it fitted no poisoning profile (and again, I researched every single one, including possible organophosphate/herbicide/fungicide/ or other toxicity from neighbouring farmland.) No profile described what I was experiencing.
And have been in a remitting/relapsing cycle for 2 years since.
Good ones, but they only fight the symptoms for several hours. I need to get to the root of the problem, maybe I am too naive, but I want it to go away.Domperidone?
Promethazin?
Have no experience with these though.