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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Tom Kindlon

Tom Kindlon
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I have been reflecting on reasons why I'm passionate to get rid of Chronic Fatigue Syndrome (CFS) following a Twitter exchange yesterday. I had a long battle against the CDC's empiric criteria which found that 2.54% of the population were affected. It was a terrible definition. For example, 89%...
Tom Kindlon
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(I originally posted this on Co-Cure back in 2007 but thought I'd post it somewhere else now. The same points still apply I thought people might find it interesting to look at the SF-36 physical functioning sub-scale as it is one of the two primary outcome measures in the PACE trial and in...

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Tom Kindlon
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