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The wiki definitely recommends CFS patients to start really low, but even lower at 3 NA.
I think that is probably good advice. Is think minimizing risk is important for people in very poor health such as ME/CFS patients.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The wiki definitely recommends CFS patients to start really low, but even lower at 3 NA.
I have just inoculated with my first dose of 3 NA. Fingers crossed.
Would anyone in the US or Australia be willing to help DHL/UPS some worms for me? I got two orders stuck in limbo for six months and I'm looking for options since regular mail isn't working. I will reimburse whoever is doing it for their time and cost and I'll send money upfront.
You might have better luck buying from another helminth provider?
I appreciate the effort, but as far as I know there is no other supplier that does DHL either. So considering the current pandemic they would all have the same problem? I would love to find out I was wrong however so if I have missed anything please let me know.
@Henrik What country are you in?
Oh, yeah I could see that it could be more difficult getting it to where you are. Hope your contact is able to get it to you. Have you thought about trying your hand at incubating your own NA?I'm in Sub-Saharan Africa. I think if I was in the US or Europe I'd be fine. The suppliers are telling me that the customers within the same continent are recieving the packages albeit a bit slower than usual. Also I've found someone in Europe that is willing to re-ship it for me so I think I should be okay now.
Thanks for answers my questions so clearly, @Gyre.
Wikipedia
Nevertheless, although my ME/CFS was virally triggered, and my blood tests show a chronic active infection with coxsackievirus B4, I am very tempted to try helminthic therapy, after reading your success story.
The cost seems reasonable ($130 for 10 Necator americanus helminths), and if it does not work, or if you start to get worse rather than better, you can very easily kill off all your helminths in just one day using the anti-parasitic drugs detailed above.
Thanks for answers my questions so clearly, @Gyre.
You didn't mention though whether your ME/CFS onset was virally-linked, or whether you have been tested for chronic active viral infections. The reason I am interested is because helminthic therapy is known to reduce the Th1 (antiviral and intracellular infections) mode of the immune response, and increase the Th2 (antibacterial) mode. This is detailed in the Wikipedia article.
So possibly ME/CFS patients who have chronic active viral infections may not fare so well on helminthic therapy; perhaps helminthic therapy might work best for autoimmune ME/CFS without active viral infections.
Nevertheless, although my ME/CFS was virally triggered, and my blood tests show a chronic active infection with coxsackievirus B4, I am very tempted to try helminthic therapy, after reading your success story.
The cost seems reasonable ($130 for 10 Necator americanus helminths), and if it does not work, or if you start to get worse rather than better, you can very easily kill off all your helminths in just one day using the anti-parasitic drugs detailed above.