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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Maybe that is the case for people who are sick too? I know last time I had a virus I had highbheart rate or blood pressure or both at nightIve just joined a Facebook group for me/cfs people using activity watches.
The idea is of to keep an eye on your heart beat or minute, and also to keep an eye on the stress in your body. I haven’t quite got the hang on what exactly the watch measure when it measures stress, but it seems to be a combination of heigh heart beat and low heart rate variation.
It seems a lot of people (me/cfs people) have an incredible high stress level at night. Their bodies are resting better awake than at sleep.
Ditto.I'm much better in the a.m., and fall off rapidly about 3:00 p.m. I can't talk on the phone after that time, for example, and often I'll go into the bedroom. Not to sleep or watch TV, but to read to help rejuvenate myself.
Their bodies are resting better awake than at sleep.
@JudeeI suspect that's because of rolling PEM that the article at the top of this thread talks about: https://forums.phoenixrising.me/thr...y-finally-spring-for-an-hr-hrv-monitor.83152/
If I do ART (aggressive rest therapy) for about 3 days in a row then my body battery numbers do go up while I sleep but if I've been doing too much or have been too stressed, they hardly budge over night and sometimes even go down while I sleep.
I feel worst (fatigue, lightheaded, generally not good) first thing in the morning when I wake up. I usually sleep around 8-10 hours per night. Never suffered from insomnia as many do, I always had the opposite of sleeping too much. I usually wake up and just have to lie in bed for an hour before I feel ready to start the day. This is unaffected by how much activity I have done the day before so not PEM related. I have noticed if I sleep 6 or 7 hours I wake up feeling more awake but then often have to nap later in the day as I get sleepy.
Anyone else have this? That their first couple of hours when they wake up are their worst? Any ideas what the underlying cause could be?
I was thinking about investing in an Oura ring to see the quality of my sleep and als those.
I've always said adrenaline is my drug of choice. After experiencing temporary paralysis (twice) I can't stand sitting around when there are things to do, and frankly, too much sitting is bad for my bones and painful. Adrenaline is an evil mistress, however, and it takes a skilled hand to rein her in when she zooms in and out at the wrong time. I love my mid-morning adrenaline boost, since it allows for a few productive hours. Anyone who knows me knows, tho, knows I have a lot of trouble letting the boost go before I get depleted. The art is finding a balance between doing things when I can and recuperating (like a battery on a charger) when I can't. I dedicate the later half of each day (and sometimes more) to recharging, avoiding people and projects until I'm fully recharged. I just have to.In my case I am producing a lot of adrenaline constantly which I can feel, especially at night. It causes repeated awakening as well as IBS symptoms, mimicking anxiety if it’s not also anxiety.
Benzos definitely calm all this which is why they are so addictive. So what’s better - pragmatically, to suffer less ‘fatigue‘ and be dependent on benzos or to be without addictive risks and suffer the systemic dysfunctions?
Anyone else have this? That their first couple of hours when they wake up are their worst?
Spikes in heart rate during the night is a sign of sleep disorders like UARS and sleep apnea, and is in fact one of the ways of diagnosing these diseases. They are very common disorders in PWME, and can cause dreadful daytime fatigue and brainfog.Ive just joined a Facebook group for me/cfs people using activity watches.
The idea is of to keep an eye on your heart beat or minute, and also to keep an eye on the stress in your body. I haven’t quite got the hang on what exactly the watch measure when it measures stress, but it seems to be a combination of heigh heart beat and low heart rate variation.
It seems a lot of people (me/cfs people) have an incredible high stress level at night. Their bodies are resting better awake than at sleep.