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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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mri

  1. L'engle

    Long Covid and brain scans

    An article that focuses on brain changes in Long Covid. Refers to several studies. It's a nice combination of personal case studies and discussion of research. https://www.statnews.com/2023/02/16/the-haunting-brain-science-of-long-covid/ I'm too exhausted to really add more. If it's...
  2. S

    Recently had my first MRI (awaiting results question)

    Right before Christmas I had my first MRI of the brain. The nurse said that the results would be available around a week later. Five days after the MRI I got a letter from my doctor with a time for a new appointment to their office two weeks later. Usually your results should be available...
  3. SNT Gatchaman

    Mapping microglia and astrocyte activation in vivo using diffusion MRI (Garcia-Hernandez et al, 2022)

    Mapping microglia and astrocyte activation in vivo using diffusion MRI Raquel Garcia-Hernandez, Antonio Cerdán Cerdá, Alejandro Trouve Carpena, Mark Drakesmith, Kristin Koller, Derek K Jones, Santiago Canals, Silvia De Santis While glia are increasingly implicated in the pathophysiology of...
  4. P

    Brainstem Abnormalities in ME/CFS: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings (Nelson et al., 2021)

    https://www.frontiersin.org/articles/10.3389/fneur.2021.769511/full#h6
  5. Pyrrhus

    ICC vs. Fukuda: Diffusion tensor imaging results differ based on diagnostic criteria (Thapaliya et al., 2021)

    Diffusion tensor imaging reveals neuronal microstructural changes in ME/CFS (Thapaliya et al., 2021) https://onlinelibrary.wiley.com/doi/10.1111/ejn.15413 From Dr. Kiran Thapaliya and Leighton Barnden, along with Donald Staines and Sonya Marshall-Gradisnik. What is Diffusion Tensor Imaging...
  6. tiredgirl928

    My MRI images for CCI/AAI/Chiari/tethered cord

    I just had my upright MRI completed and I was wondering if anyone could offer some insights :) I have numbness and weakness all over, but it is worse on the R side (along with fatigue, insomnia, GI issues, and PEM). I have not been evaluated for Ehler-danlos, but I do have noted hypermobility...
  7. F

    Medscape: Gray Matter Imaging Reveals MS Changes Missed on Standard MRI 2019

    by Nancy Melville https://www.medscape.com/viewarticle/913769?src=WNL_infoc_191126_MSCPEDIT_TEMP2&uac=346616FY&impID=2179802&faf=1
  8. B

    My MRI imaging for CCI evaluation

    Okay, so I've got the full set of flexion, extension and neutral MRIs. It would be really cool if @jeff_w, @JenB and @Hip could give their opinion. :) From my amateurish analysis, a lot of the measurements seem borderline or pathological: CXA in neutral is around 139 degrees, which is...
  9. A

    Finding a Facility for CCI Imaging

    Hi! Has anyone ever compiled a resource of imaging facilities that have a 3T machine and could perform the upright MRI to determine if a patient has CCI? Or does anyone know of any/how I could go about finding one? Dr. Chheda is considering writing the MRI order for me, but let me know that I'd...
  10. Murph

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS

    Neuroimage Clin. 2018;20:102-109. doi: 10.1016/j.nicl.2018.07.011. Epub 2018 Jul 11. Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in chronic fatigue syndrome. Barnden LR1, Shan ZY2, Staines DR3, Marshall-Gradisnik S4, Finegan K5, Ireland T6, Bhuta S7...
  11. Cheesus

    Decreased connectivity and increased BOLD complexity in the default mode network in individuals with

    Decreased connectivity and increased BOLD complexity in the default mode network in individuals with chronic fatigue syndrome Dr. Zack Y Shan, Mr. Kevin Finegan, Dr. Sandeep Bhuta, Mr. Timothy Ireland, Prof. Donald R Staines, Prof. Sonya M Marshall-Gradisnik, and Dr. Leighton R Barnden. Brain...