• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. perchance dreamer

    My Bad Experience With Growth Hormone Peptides - Need Advice How To Fix?

    I've been on CJC/Ipamorelin for months, and the sleep improvement has stayed at the same level. I haven't had any problems with it. I don't do injections, though. I take it as a troche, which I get by prescription at a compounding pharmacy. The time of day I take it makes a big difference...
  2. perchance dreamer

    Is electro-magnetic field (EMF) hypersensitivity a real thing?

    This company sells EMF-mitigating subscription services and has a free 15-day trial. https://www.flfe.net/
  3. perchance dreamer

    Be careful with low carb / keto diets

    I really feel better when I avoid grains and limit legumes, red meat, and dairy. Controlled amounts of fruit, sweet potatoes, and winter squash work well for my carbs.
  4. perchance dreamer

    Be careful with low carb / keto diets

    The diet that works best for me is to have for every meal protein, fats, non-starchy vegetables, and a carb such as berries, apples, or a little hummus during the day and usually a medium serving of sweet potato at night. The sweet potato with dinner helps my sleep. I don't bother with watching...
  5. perchance dreamer

    Is electro-magnetic field (EMF) hypersensitivity a real thing?

    I don't know if it has anything to do with how well it's working for me, but I've also had another one of their products for a couple of years, the Vedic. I'm still running it, also. The customer support person had said it's okay to have more than one Somavedic device in the home. I never found...
  6. perchance dreamer

    Is electro-magnetic field (EMF) hypersensitivity a real thing?

    @ChrisD, I recently got the new Somavedic Luna and am finding it very helpful for sleep.
  7. perchance dreamer

    Insomnia from valacyclovir

    I rub off the blue dye under water, which sometimes annoys me because when I asked a pharmacist why the tablets are coated with blue dye, he said it's just for cosmetic reasons.
  8. perchance dreamer

    Insomnia from valacyclovir

    If I take it after breakfast, it doesn't cause me sleep problems. However, I've never been able to exceed 500 MG without having sleep problems.
  9. perchance dreamer

    Brain functional connectivity in people with ME/CFS

    At night I'll sometimes do EFT tapping in my imagination, and it often works very well. For example, I have arthritis on the top of one of my feet. It was aching the other night, so rather than get up and apply a topical pain reliever, I did EFT in my head, and the pain went away. If I wake...
  10. perchance dreamer

    VAGUS NERVE STIMULATION

    The Canadian company Vielight has a vagal nerve stimulation product: https://www.vielight.com/wp-content/uploads/2023/12/Vielight-Vagus-Info-Sheet-Final-PBM-XD.pdf Box breathing or 4,7,8 breath work calms me really well, so I've never really looked at methods other than breath work to...
  11. perchance dreamer

    Extremely chapped lips

    While you are figuring out the cause of your chapped lips, do you have a good balm? The best I've ever found is Malin + Goetz, which I get on Amazon.
  12. perchance dreamer

    Types of Magnesium

    @jason30, I had never heard of nano magnesium. I'd be interested to hear your response if you try it. I understand the magnesium is in nano form, but I can't figure out what type of magnesium it is, for example, glycinate, oxide, citrate, chloride, or what? Isn't all magnesium some type or...
  13. perchance dreamer

    How to deal with low folate?

    I had given up on methylfolate supplements because they always gave me insomnia, even taken first thing in the morning. Then my P.A. suggested Doctor's Best Fully Active Folate, which contains the Quatrefolic form. It comes in 2 different strengths, 400 mcg and 800 mcg. Since I have such a...
  14. perchance dreamer

    Mast Cell Activation Syndrome (MCAS)

    I've found Ketotifen very helpful for my chronic allergies. I take it at night since it's calming.
  15. perchance dreamer

    Dang those Vitamin D3 levels

    Xymogen's D3 liquid has raised my levels to where my P.A. likes them. I really like this product because it is inexpensive and keep for months in the refrigerator. Each drop has 1000 IU.
  16. perchance dreamer

    Anyone Else Find Meditation Greatly Helps Their Condition?

    I don't meditate, but breathing exercises help calm me, which indirectly helps my pain. I think that's because pain increases sympathetic nervous activity, and slow, controlled breathing tamps that down and increases parasympathetic activity, which seems to lessen pain, in my case. The...
  17. perchance dreamer

    Too much methylation. I'm dessesperate

    I found SAM-E way too strong for my overly reactive system. It gave me energy, but robbed me of sleep.
  18. perchance dreamer

    Comment by 'perchance dreamer' in 'Healing Gut: part 2 medicinal mushrooms'

    What time of day do you take Lion's Mane, @sunshine44? Do you notice a calming effect or a stimulating one? I do well with Host Defense Cordyceps powder, but I can only take a tiny amount since I find it very energizing.
  19. perchance dreamer

    Comment by 'perchance dreamer' in 'Healing Gut: part 2 medicinal mushrooms'

    I'm really interested in medicinal mushrooms and have experimented with some, but have discovered that chaga has a bad effect on my sleep, even a little first thing in the morning. It's really overly stimulating for me.
  20. perchance dreamer

    video: How PUFA-rich plant oils promise health and kill years later with cancer

    I really like Primal Kitchen avocado mayonnaise. It doesn't have sugar, and the oil is from avocados. Mayonnaise frequently has unhealthy ingredients such as seed oils like canola or cottonseed oil. In the U.S., we were told for years that canola oil is very healthy, but that was bogus.
  21. perchance dreamer

    Lactobacillus and Mental Health

    I haven't tried these products, but Garden of Life has 2 probiotics for mood, developed by the neurologist David Perlmutter: Mood Daily Care and Mood Plus. The 1st ten ingredients for each are different forms of lactobacillus. The fatty acid DHA , found in cold water fish, helps me with mood. I...
  22. perchance dreamer

    "B" Vitamin Supplement Makes CFS/ME Symptoms Worse?

    My experience with these 2 are similar, @Judee. TMG is very stimulating, and even a little bit in the morning gives me sleep problems. I do better with DMG, which does have a calming effect. I take it as a methyl donor. That said, some people take DMG for energy, and others do well with TMG.
  23. perchance dreamer

    NAC (N-acetyl cysteine) dramatically improves my symptoms of thirst, dehydration and frequent urination

    I wish I could take NAC since I have allergies, but it gives me really bad insomnia.
  24. perchance dreamer

    Increase in artificial scents sensitivity - anyone else?

    We really like our metal roof because it's required very little maintenance through the years, and we love the sound of rain on the roof.
  25. perchance dreamer

    Success from Probiotics

    My doctor recommended the Flora 3.
  26. perchance dreamer

    Increase in artificial scents sensitivity - anyone else?

    And then there's the amorous skunk Pepe Le Pew, for those of us raised on Bugs Bunny. He was handsome, but not particularly well mannered.
  27. perchance dreamer

    Increase in artificial scents sensitivity - anyone else?

    Two people I went to culinary school with also said they like the smell of skunk.
  28. perchance dreamer

    Success from Probiotics

    I had chronic diarrhea for about 2 1/2 years, and one of the things that helped resolve it is a probiotic from Lane Innovative Flora3. It contains saccharomyces boulardii. My digestive problem is over, but I continue to take a lower maintenance dose. https://www.laneinnovative.com/product/flora3-2/
  29. perchance dreamer

    safe and sound protocol

    I love my Alpha-Stim! It took me a lot of time and experimenting to figure out the best way for me to use it. I need to use it with my eyes closed and at the low intensity of 1 for twenty minutes. The time it's most effective for me to use is when I wake up during the night and can't get back...
  30. perchance dreamer

    Increase in artificial scents sensitivity - anyone else?

    In my city, many building now have scented cleaning products that permeate the entire building so that even if an office is not using a scented candle or incense, there's still a smell. A common belief is that people with fragrance sensitivities can tolerate essential oils. Well, I can't. Any...