• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. lilian54

    Revised Simplified Methylation Protocol (August 25, 2012 Revision)

    Thanks, Rich - I am taking Metafolin, since I read about it here, for the last couple of months, a quarter of a tablet per day. I think it's been helping. I will try a 2000mcg dose of m-b12, have to be careful I don't go too low and fall off the edge as it's very hard to get back again (did...
  2. lilian54

    Revised Simplified Methylation Protocol (August 25, 2012 Revision)

    I had good results from first following some of Fredd's and now for the last couple of years a protocol similar to Rich's. Very high doses of B12 (6 or more x 5000mcg m-B12 lozenges each day) seemed to be necessary to recover from the bad place I was, nearly unable to walk or sleep and losing...
  3. lilian54

    Are Parkinson's and ME related?

    just saw this thread - I too am very interested in any info about links, I have me/cfs and my brother has Parkinson's. PWP are often low in B12 and glutathione suggesting problems with the methylation cycle. http://www.ncbi.nlm.nih.gov/pubmed/22367474...
  4. lilian54

    Is it Dementia... or B12?

    Hi Ron, You can find Freddd's reply in the 'HYPERSENTIVITY IDENTIFIED' thread in this section. You may know this already - there's evidence that PWP on levodopa have low levels of B12 and folate http://www.ncbi.nlm.nih.gov/pubmed/18055246. Also http://www.ncbi.nlm.nih.gov/pubmed/22367474...
  5. lilian54

    Article: ME/CFS Recovery/Recovering Stories Requested

    Here's my info: Type of onset Bad bout of 'flu Age at onset 26 Degree of debility at its worst (how sick were you?) 4.5 out of 5 at worst, with some periods of several years with few symptoms Length of illness 30 years Effective treatments b12/folate one a day for many years, then discovered...
  6. lilian54

    Is it Dementia... or B12?

    Hi Ron, I've just asked Freddd about using his B12 protocol for Parkinson's, will let you know what he says.
  7. lilian54

    HYPERSENSITIVITY IDENTIFIED

    Hi Freddd, It's really interesting what you say about Parkinson's - my brother has it and just told me he's got similar parasthesia problems in his feet as I had so I've been wondering if any of his symptoms might be B12-responsive. I have CFS and hypothyroidism and have got a lot of benefit...